Happy Saturday and Halloween weekend!!
Ashley is awake and well this a.m. since 7:30 a.m. (after a long night for Mom due to her shared roommates not going to bed until after 12:30 a.m., talking on the phone loudly until then and talking to each other and their keeping their lights on all night!) When I told the nurses that I needed the "spotlight" from their side taken off of the baby, I was politely told that unfortunately it was THEIR room (or side of the room) so they didn't have to change anything!! Did I mention that we'll be really happy when we are able to be discharged?!!!
Now, that Ashley is back on solid foods, she continues to eat like a hungry football player -- she becomes very happy and smiley when she knows that the food tray is coming around!! It's like a restaurant here; there's a 6-7 page menu of all items from breakfast to dessert and drinks. Kids can have as much as they want pretty much any time that they want it. Of course, as we know by now, with the food intake, Ashley's stomach begins to bloat like a basketball, so she'll be watched carefully over the day. The food and bloat are definitely very related events.
She had more blood work run this morning, had another weigh-in - gained a few more ounces (yeah!) and will have another flush-out later today (I am sure she cannot wait). According to the resident that I spoke to this morning, we'll be here until at least Monday (and hopefully only Monday!) Then we'll have some at-home procedural work and she'll be brought back in after a few weeks for biopsy of some additional areas. Once the biopsies start, then we should have a really good idea of what is happening. Unfortunately, with her condition, you have to run one test at a time to rule out things, before you actually can determine what is going on with her.
In the meantime, we had a cruise down to the playroom full of everything that you can think of (art supplies, toys, videos, games, blocks, TV etc.) and she is having a good time playing with the toy phone that I got her and looking at books with pictures of babies in them. She also loves bubbles, as we discovered this morning! That was quite exhausting, so she is taking a short catnap before the next meal arrival.
Not to forget the boys, Aunt Rita was able to stay with Ashley for a few hours yesterday, while both Charlie and I got to Goddard to see the Halloween Parade. Ironman (Kyle) and Spiderman (Dylan) had a great parade and after-party. They both thought that they should keep their costumes on to go to a restaurant (which we persuaded them not to do) and then play in them this weekend. They are off to a friend's birthday party tonight (pumpkin patch and hayride) and then we'll do trick-or-treat with them tomorrow night. Both Kyle and Dylan seemed glad to get back to school after almost a month off.
Charlie is the picture man, so I'll have him post pictures (new of Ashley and the boys) later on tonight when he gets here.
Thanks for all of the support and thoughts. We really cannot wait to get home soon.
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