Hi all - it's hard to believe that Friday is here already. This week has been a total blur.
Today, Ashley has decided that she can't sit or stand by herself, so I have been carrying her around all morning and now she is finally perched on my lap at the kitchen table, while I try and type. After her hospital ordeal, she appears to be moving into a cold or heavy teething phase, so her nose is running uncontrollably which makes her EXTRA cranky. This is even after logging in 13 hours of sleep last night!! She can rival Kyle as a very heavy and deep sleeper, which is super. She seems to really love her crib and her musical aquarium and ipod tunes ensemble every night. I think that this is our first child that has so easily adapted to their home bed very quickly.
Since Ashley was so limited on food for several weeks, she has decided that she will join the champion eating team and has been eating copious amounts of food each day, especially at dinner. She has a very wide variety of appetite from McDonald's chicken nuggets to ramen noodles to roast, potatoes and carrots. She does like to eat SLOWLY so she easily can spend an hour getting through a meal!! She also has a sweet tooth so she was following Kyle around last night, so that she could sample his Halloween candy. She still does not like to drink much of anything, so that's been a small challenge as we try all different types of drinks for her.
We can't say that post our very long and extended CHOP Hospital visit that we have all of the answers yet on her health. What appears to be the case is that she does have Hirschsprung's disease and that she did have an operation as a very small newborn child, in order to attempt to correct the diseased colon. However, our Dr. said that when the operation is done at such a young age, there usually are potential complications, which she seems to be suffering from now. He wants to take a cautious and conservative approach to her stomach issues until she gets a bit older. So for now, we are still on a "wait and see" type of approach. Food and her stomach size continue to run a vicious cycle, but now that we are home and things are settling a bit, her stomach does not appear to be rebelling quite as much. She will still need some every other day home care, but hopefully she can grow out of most of the issues. In the meantime, she'll have medical follow-ups every so often.
In the meantime, we are very lucky as we are in contact with her foster family that still misses her so much, but does want to see her succeed and grow in life. They love to see all of the recent pictures that we have sent to them (non-hospitalization) as she has fun with her new brothers.
We will spend this weekend battening down the hatches, as Ashley is into EVERYTHING to see if she can use it, eat it, pull it or throw it! My first purchase yesterday was stove knob covers, since she tried to turn on the stove for me the other night. Right now, she is attempting to pull the buttons of a calculator, so we will have a busy girl on our hands!!
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